Disclaimer and Privacy Policy
Please Read the Following
This page sets out the disclaimer and privacy policy of Invest in ME Research
(UK Charity No. 1153730). It applies to this website, our newsletters, and our
events including the Biomedical Research into ME Colloquium (BRMEC), the
International ME Conference (IIMEC), and the Young EMERG workshop.
Website Disclaimer
The pages on this website are offered as a free access information resource.
The views expressed on this website by contributors and others do not necessarily represent those of Invest in ME Research.
The articles and information presented on our website do not constitute medical advice. No medical recommendations are given or implied. Patients with any illness are recommended to consult their personal physician at all times.
Conference and Colloquium Disclaimer
The views expressed at Invest in ME Research events — including the International ME Conference (IIMEC), the Biomedical Research into ME Colloquium (BRMEC), and the Young EMERG workshop — by presenters and delegates, as well as any information material distributed, are their own personal opinions. These opinions may not necessarily be shared or endorsed by the Trustees of Invest in ME Research.
Invest in ME Research accepts no responsibility for the views expressed or any subsequent actions taken. The contents of any presentation should not be interpreted as an endorsement, recommendation, or approval by Invest in ME Research.
The materials presented at Invest in ME Research events do not constitute medical advice. No medical recommendations are given or implied. Any individual registering for or attending an event who may take any action or consider medical treatment or referrals should seek detailed advice from their own medical practitioner.
Invest in ME Research disclaims any implied guarantee about the accuracy, completeness, timeliness, or relevance of any information contained at its events. By registering for or attending an event, you agree that Invest in ME Research is not liable for any complications, injuries, losses, or other medical problems arising from, or in connection with, the use of or reliance upon any information contained therein.
Privacy and Data Protection
Who We Are
Invest in ME Research is a UK registered charity (Charity No. 1153730) and the data controller responsible for your personal data. You can contact us at info@investinme.org or by post at PO Box 561, Eastleigh, Hampshire SO50 0GQ.
What Data We Collect
When you register for one of our events, we collect the personal information you provide in the registration form. This may include your name, email address, institutional affiliation, professional role, and research interests.
When you subscribe to our newsletter, we collect your name and email address.
When you use our website, standard server logs may record your IP address and browser information. We do not use tracking cookies beyond those strictly necessary for the website to function.
Why We Collect It and Our Lawful Basis
We collect registration data to administer your participation in our events and to communicate with you regarding them. Our lawful basis for this processing is legitimate interests — specifically, the legitimate interest of a research charity in organising and administering its scientific events.
We collect newsletter subscription data on the basis of your consent. You may withdraw that consent at any time by unsubscribing via the link in any newsletter email.
Who We Share Your Data With
Your registration data is processed via Zoho, our registration form provider, which acts as a data processor on our behalf. Zoho processes data in accordance with GDPR. We do not sell, rent, or otherwise share your personal data with third parties for marketing purposes.
For event administration purposes, your name and institutional affiliation may be shared with the event venue and, where relevant, with co-organising bodies such as the European ME Research Group (EMERG). Your data will not be shared beyond what is necessary for these purposes.
Newsletter subscriptions are managed via Mailchimp. Where data is processed by third-party services such as Zoho or Mailchimp, it may be transferred outside the UK or European Economic Area. Where this occurs, we ensure that appropriate safeguards are in place in accordance with UK GDPR requirements.
How Long We Keep Your Data
Registration data is retained for a period of three years following the event, after which it is securely deleted. Newsletter subscription data is retained for as long as you remain subscribed.
Your Rights
Under UK GDPR you have the right to access the personal data we hold about you, to request correction of inaccurate data, to request deletion of your data, to object to or restrict our processing of your data, and to request a copy of your data in a portable format. To exercise any of these rights, please contact us at info@investinme.org. We will respond within one calendar month.
How to Complain
If you have concerns about how we handle your personal data, you have the right to lodge a complaint with the Information Commissioner's Office (ICO) at ico.org.uk or by calling 0303 123 1113.
Changes to This Policy
We may update this policy from time to time. The date below reflects when it was last revised. We encourage you to review it periodically.
Last updated: March 2026