Energising Research into ME

Invest in ME Research is an independent UK charity finding, funding and facilitating a strategy of biomedical research into Myalgic Encephalomyelitis (ME or ME/CFS), as defined by WHO-ICD-10-G93.3. and promoting better education about ME.

Invest in ME Research is run by volunteers - patients or parents of children with ME - with no paid staff.

Overheads are kept to a minimum to enable all funds raised to go to promoting education of, and facilitating and funding biomedical research into, ME.

The charity believes that biomedical research into ME is crucial in order to make progress in treating this disease. We also believe that education of healthcare staff, the media, government departments, patient groups and patients is to be a priority.

The charity's objectives are to initiate, maintain and augment a strategy of high-quality biomedical research into ME, to provide education about ME, and to raise awareness of the effects of the disease on patients and families.

We are a small charity but with supporters who have big hearts - and a determination to get the best possible research to be carried out to find the cause of myalgic encephalomyelitis and develop treatments.

We have links nationwide and also internationally.

Invest in ME Research is a founder member of the European ME Alliance (EMEA), a collaboration of European national charities and organisations.

The charity was also responsible for initiating the European ME Research Group (EMERG) concept, a collaboration of European researchers from major institutes.

Recently, the charity was has initiated the European ME Clinicians Council (EMECC), a network of European clinicians who will work together and share experiences of treating ME in order to establish better standards for patient care.

We do not receive, and have never received funding from government or government organisations.

We believe that we need a national strategy of biomedical research into ME to produce treatments and cures for this illness.

We have always believed that the seriousness of the situation regarding ME makes it necessary for governments to provide "ring-fenced" funding for biomedical research in to ME (as was provided for HIV/AIDS) in order to address the need for development of diagnostic tests and remedial treatments.
However, the charity does not believe in merely asking for funding - the charity has pursued of policy of raising funds itself for biomedical research in order to fund research at top UK institutes. More information is available here.

We believe that clinicians should standardise on usage of the most up-to-date criteria (currently we emphasise the Canadian Criteria) for diagnosis so that there is an agreed basis (noting that evolutionary improvement would be welcomed).

The charity organises an annual research Colloquium and conference regularly attracting delegates from over 15 countries and funds research at Quadram Institute Bioscience/University of East Anglia and University College London as well as influencing collaboration elsewhere, in UK, Europe and beyond.

Our conferences and colloquiums were organised from the beginning in order to provide a platform for research and a means of facilitating education about ME.

In order to bring the best education and research to bear on ME and to find and facilitate the best strategy of research into this disease the charity welcomes support for our work.

Our aim is to fund and facilitate research in order to establish an understanding of the aetiology, pathogenesis and epidemiology of ME. We hope this will lead to the development of a universal diagnostic test(s) that can confirm the presence of ME and, subsequently, medical treatments to cure or alleviate the effects of the illness

Our efforts are focused on setting up a UK/European Centre of Excellence for ME which will provide proper examinations and diagnosis for ME patients and a coordinated strategy of biomedical research into ME in order to find treatment(s) and cure(s).

On the right of the page we have a number donation buttons which direct funds to help the charity cover the costs of conferences and research meetings and the general running of the charity or to augment ring-fenced funds for specific research projects.
We thank you for considering supporting us.

Use Our Website

Research

Our research strategy and the research funded by the charity

Information

Information and articles about ME

Conferences

Our annual international Colloquiums/Conferences

Fundraising

Details of our fundraising activities and how to help us

Let's Do It For ME

Patient-driven campaign to raise awareness and vital funds for research into ME

About Us

More information about the charity

News

Current and archived news from the charity

Centre of Excellence for ME

Our proposal for a UK Centre of Excellence for ME

Education

Useful educational aids for ME awareness

European Collaboration

Founder member of the European ME Alliance (EMEA) – working together across Europe

Recent/Upcoming Events

Organised by Invest in ME Research
Inaugural meeting of a new initiative from Invest in ME Research to create a network of experienced clinicians for ME. More details here.
#TtF - Thinking the Future - Early Career Researcher Conference in London - on 28th May 2019. More details here.
#BRMEC9 - our ninth international Biomedical Research into ME Colloquium - held in London - on 29th - 30th May 2019. More details here.
Invest in ME Research #IIMEC14 Pre-Conference Dinner. Welcoming guests from eighteen countries.
#IIMEC14 - our fourteenth ME international conference in London - on 31st May 2019 at One Great George Street. More details here.
The European ME Alliance (EMEA) Annual General Meeting for 2019 - hosted and arranged by Invest in ME Research. EMEA.