Invest in ME Research Biomedical Research Colloquiums

The Invest in ME Research Biomedical Research into ME (BRMEC) Colloquiums are research meetings organised by the charity to encourage biomedical research into ME and international collaboration amongst researchers.
This has been one of the main objectives of the charity.


Invest in ME Research began arranging biomedical research conferences in our first year and have continued them ever since - mostly funded by the charity but with help from some wonderful supporters and some good friends.

The Invest in ME Research International Biomedical Research into ME Colloquiums began in 2011 as a way of bringing together researchers from around the world in a round-table discussion of ME research and ideas.
Over the years this has broadened into sharing of experiences, data and plans for future research and international collaboration.
A culmination of much of this effort was the initiation of The European ME Research Group (EMERG) concept which formed in October 2015 in London in an attempt to set up a strategy of European collaboration in ME research.

We are building a basis for creating a strategy of high-quality international biomedical research - something which has been lacking in the past decades.
This will hold great promise of finding funding opportunities and raising awareness of biomedical research into ME.

Our aim with the annual CPD-accredited research colloquiums has also been to introduce new researchers into the field of ME research, to gain new insights into the disease and enhance the strategy of research we are building.

We augment this in 2018 with the Thinking the Future meeting to build a network of young and early career researchers interested in or already performing biomedical research into ME.

The Invest in ME Research Colloquiums have spawned a number of positive initiatives over the years and are the most successful research meetings for forming new research initiatives for ME with multiple collaborative initiatives being formed across continents.


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Biomedical Research into ME Colloquium 4 - 30th May 2014

BRMEC4

BRMEC4 Research Meeting London, 2014

Invest in ME made the commitment to continue to organise and host the Biomedical Research into ME Colloquium 4 collaborative meeting - this time in May 2014. This international researchers meeting followed on from the successful BRMEC2 and BRMEC3 meetings of 2012 and 2013.

The BRMEC4 Colloquium was intended to harness the potential of international collaboration with an objective of extending research cooperation and help drive new initiatives with biomedical research into ME.

The research meeting was in London and preceded the IIMEC9 annual international biomedical research conference on 30th May 2014.

Almost 50 researchers from nine countries attended the colloquium and a number of new initiatives were created which will benefit biomedical research into ME.

Welcome to London and BRMEC4 2014

Dear Participants,

Welcome to the Invest in ME Biomedical Research for ME Colloquium Meeting (BRMEC4) on 29th May 2014. Thank you again for participating in this exciting and innovative meeting which builds on the foundations made in previous years through meetings organised by the dedication and commitment of Invest in ME and its supporters.

Promising developments have been initiated in recent years which have created important possibilities for changing the way that Myalgic Encephalomyelitis (ME, known also as or ME/CFS or Chronic Fatigue Syndrome (CFS)) is researched and the way that patients are treated. High-quality research by an impressive group of researchers and physicians, with an emphasis on international collaboration - these are the aims of Invest in ME and it is our intention to continue to facilitate this and encourage new scientific research endeavours to understand the pathogenesis of ME.

This will be our fourth international ME research colloquium in London, taking place prior to our annual IiME international conference, and we look forward to enabling a unique contribution to understanding ME and suggest future research. For those who can use CPD points then this meeting has been awarded 6 CPD points by the Royal Colleges.

Co-Chairs of the meeting will be Dr Ian Gibson, former Dean of Biology at UEA, and Emeritus Professor of Connective Tissue Medicine Jonathan Edwards, University College London.

We look forward to meeting up in London.

Warm regards

Kathleen McCall Chairman Invest in ME

Invest in ME BRMEC4
Welcome and introductions Co-Chairs: Dr. Ian Gibson Prof.Jonathan Edwards UCL
Pathogen Discovery and Pathogenesis - CFI Dr. Mady Hornig, Columbia Univ, USA
Infection-induced autoimmunity in ME Prof. Jonas Blomberg, Uppsala Univ, Sweden
Microbiome of ME/CFS patients Prof. Maureen Hanson, Cornell Univ.,USA
OMI research Update Dr Andreas Kogelnik, OMI, USA
Chaired Discussions Prof. Jonathan Edwards/Dr.Ian Gibson
Antibodies in Neurological Diseases Prof. Angela Vincent, Oxford Univ.
Rituximab multi-centre clinical trial Prof.Olav Mella/Dr. Oystein Fluge, Bergen, Norway
Rituximab UK clinical
- Preliminary B-cell study
Dr. Jo Cambridge, UCL, UK
EBV and ME Prof. Carmen Scheibenbogen, Charite, Berlin
Chaired Discussions Prof. Jonathan Edwards/Dr.Ian Gibson
Update on ANS studies Prof. Julia Newton, Newcastle, UK
Brain imaging and ME Prof. James Baraniuk Georgetown Univ., USA
NK-, B- and T-cell phenotypes and function in patients suffering from ME Prof. Sonya Marshall-Gradisnik, Griifiths Univ.,Australia
ME Biobank Dr. Eliana Lacerda/Dr Luis Nacul, LSHTM
Chaired Discussions Prof. Jonathan Edwards/Dr.Ian Gibson
Ways to Continue Collaboration and Discovery Funding Possibilities - IiME Proposal Plenary: Prof. Jonathan Edwards/Dr.Ian Gibson
Closing Summary and Future Directions Prof. Jonathan Edwards/Dr.Ian Gibson Briefing to Invest in ME Conference

A report of BRMEC4/IIMEC9

Biomedical Research into ME Colloquium 3 - 2013

BRMEC3

BRMEC3 Research Meeting London, 2013

In May 2013 the Biomedical Research into ME Collaborative meeting was held in London with 40 researchers from 9 countries attending, prior to the IIMEC8 Invest in ME International ME Conference 2013 - http://bit.ly/ZK7eoC To raise awareness of ME, and promote collaboration, innovation and foundations for a clearer strategy of biomedical research into ME, Invest in ME and the Alison Hunter Memorial Foundation of Australia continue the collaboration which has been a feature for several years, and which established the Clinical Autoimmunity Working Group which met in London in May 2012.

To achieve continued progress in understanding and treating this disease we must establish collaborations between biomedical researchers who can agree a clear strategy of biomedical research. Therefore, to attempt to increase collaboration and awareness and to encourage new researchers to the field we are arranging a research meeting which brings together major researchers in order to crowd source ideas on ME research - a Biomedical Research into ME Collaborative meeting. Representatives from seven countries attended.

Since its inception Invest in ME have campaigned for biomedical research into ME. IiME began arranging our biomedical research conferences in our first year and have continued them ever since - mostly funded by the charity but with help from some wonderful supporters and some good friends.

At our IIMEC8 conference we focus on ME now becoming a mainstream research area. We have representatives from most of the main biomedical research initiatives now occurring throughout the world.

Welcome to London and BRMEC3 2013

Dear Friends,

It is an honour to welcome you to London and the Biomedical Research into ME Collaborative meeting. This meeting has been made possible through the continued commitment to biomedical research being made by UK charity Invest in ME and their supporters.

The objectives of the meeting are:

1. To present the status of the latest initiatives occurring in biomedical research into ME

2. To discuss and explore the possibilities for collaboration and for funding for biomedical research into ME

3. To generate new ideas regarding research into ME and assess research strategies for ME research

4. Review evidence for immunological derangement in ME

5. Review experiences and expertise from other research areas in order to assist ME research

6. To discuss opportunities for extending clinical trials in multiple centres and possibly internationally

7. To plan future events

We hope that the meeting will initiate new collaborations and generate new ideas for biomedical research into ME and help researchers support each other in the future.

The extraordinary skill and experience which can be harnessed by meetings such as last year’s Clinical Autoimmunity Working Group meeting in London and this year’s BRMEC meeting, as well as the possibilities to progress further understanding of the disease by “crowdsourcing” experience and ideas, promises to enable a unique contribution to understanding ME and suggest future research directions and perhaps treatments.

Chairing the meeting will be Dr Ian Gibson, former Dean of Biology at UEA and Professor Hugh Perry of Southampton University Chair of the Medical Research Council Neurosciences and Mental Health Board.

Invest in ME is keen and willing to support further collaborative efforts in biomedical research into ME and welcome the opportunity to continue these joint efforts,

Warm regards

Kathleen McCall Chairman Invest in ME

Invest in ME Research BRMEC3
Welcome and introductions (Chairs: Dr Ian Gibson/Professor Hugh Perry)
Pathogen Discovery and Pathogenesis = CFI (Professor Mady Hornig)
Retroviruses and ME (Professor Greg Towers)
Pathogen Discovery (Professor Jonas Blomberg)
Gut Microbiota and ME (Professor Simon Carding)
Chaired Discussions (Dr Ian Gibson/Professor Hugh Perry)
Experience of Rituximab in ME/CFS and present a case for extending clinical trials
as per Norwegian protocols or other parallel trials
(Dr Oystein Fluge/ Professor Olav Mella)
Rituximab in autoimmune diseases (Dr Jo Cambridge)
Update on immunological derangement that may dovetail with the Fluge et al findings. (Dr Don Staines)
Screening NK-, B- and T-cell phenotype and function in patients suffering from ME (Dr Julià Blanco)
Chaired Discussions (Dr Ian Gibson/Professor Hugh Perry)
ANS studies (Professor Julia Newton)
FDA Meeting outcome /Treatment with Vistide (Dr Dan Peterson)
OMI MERIT Strategy (Dr Andy Kogelnik)
Chaired Discussions (Dr Ian Gibson/Professor Hugh Perry)
Funding Possibilities
Ways to Continue Collaboration and Discovery
Chaired Discussions (Dr Ian Gibson/Professor Hugh Perry)
Closing Summary and future directions (Ian Gibson/Hugh Perry/IIME)